Sisters Remember Love, Loss, and Genetic Legacy

Aug 31, 2017

Mary Madsen and Nancy Muhs are sisters, but they call themselves best friends. Together they faced the deaths of three of their six brothers due to Hunter Syndrome, a rare genetic disorder that only affects boys. The life expectancy of those with Hunter Syndrome is about 10 to 15 years.

Mary and Nancy stopped by the StoryCorps booth in Des Moines recently to share remembrances of their brothers, and to talk about how they dealt with the knowledge that they could have passed Hunter Syndrome on to their own children.

Story Corps is a national initiative to record and collect stories of everyday people.